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Effective date: 2nd September 2022.

The website covered: The Rare World Official.


Last updated on: 2nd September 2022.

The Agreement:

This Privacy Policy is meant to help you understand what information we collect, why we collect it, and how you can update, manage, export, and delete your information.

You can use our website to browse through our services, get to know The Rare World Official in a better way, and make purchases of the services/products offered.


The Website with the URL is owned and operated by The Rare World Official and Dr. Shyamala Peesapati.

We are committed to respecting your privacy.

The information collected may include personal data and personal information under the Indian Information Technology Act 2000 and is subject to fair and legal use.

If you have any questions about this Privacy Policy you can contact us via email at

1) Definitions:
i) Website – Website means the official site of The Rare World Official with the URL

ii) Consent and Acceptance – By browsing the website and submitting your personal information you agree to this Privacy Policy.

iii) Personal Information – Personal Information may include the phone number, Email ID, your details including name, age, address, and employment status, call and message log information, time and date of call, your apps, browsers, and devices.

If you purchase through the site it will collect your payment information through the payment gateway connected. Additionally, Wix might also store cookies and web beacons of the visitor. We collect your personal information to provide and continually improve our services.

Since this website is made primarily to help patients with rare diseases we might also collect your medical history, medical logs, and relevant patient information including diseases of interest, your role in rare disease, professional medical information, medical license number, medical content that you may provide through our message boards and forums including but not limited to event details and photos.

iv) Cookies - text files with small pieces of data — like a username and password — that are used to identify your computer as you use a computer network.

v) Web beacons – Clear graphic images are usually used in combination with cookies to track and monitor a user’s activity (We do not intend to use them obtrusively, any use is strict to improve the user’s experience.

The Rare World Official will not be liable for any such unintentional obtrusion).

2) Confidential Property of The Rare World Official
a) General:

i) We want to provide better services to all our users, hence we securely store your information to provide you with a good user and customer experience.

The Information shared remains confidential with The Rare World Official and will not be used outside the professional commitment without the user’s consent unless reasonably necessary.

ii) Our privacy policy is subject to change at any time without notice. To make sure you are aware of these changes please review this policy periodically.

iii) Your personal information is kept confidential and safe with us legally to provide and continually improve our services. No third party may access or process this sensitive information held by us without first having entered into a Confidentiality Agreement.

iv) When you visit our website some information may be automatically collected such as Operating System (OS) running on your device, Internet Protocol (IP) address, access times, browser type and language, or with cookies and web beacons.

v) We will retain your information as long as we require this to provide you with the goods and services and for such a period as mandated by concerned laws.

b) How the information is collected under the website:
i) The data collected will depend on the content and extent of your interaction with the website. If the website prompt requires you to submit any personal information and you comply with an action, that would amount to implied consent. Data will be collected when you visit the website.

ii) Through business interactions within or outside of the website.

iii) We may also receive information from other sources such as public databases, social media platforms, or other third parties including information required to deliver a product/service purchased to make communication smoother.

iv) Information about your interaction with our subsidiaries will also be subject to a similar treatment.

v) We also collect information about how you use our products and services. Any illegal use will be strictly actionable.

vi) Through Uniform Resource Locators (URL), clickstream data, date and time of internet activity, cookies information, and number, the content you viewed or searched for, page response times, number of downloads, content downloaded and download errors, frequency, and length of visits to a certain page, page interaction information

(such as scrolling, clicks, and mouse-overs).

vii) We automatically collect information through cookies. Most web browsers are set to accept cookies by default.

You can choose to set your browser to not accept/remove cookies. However, some features will be unavailable if you reject cookies. See your browser’s instructions on changing your cookie settings.

viii) Information may be collected through web beacons on the website to provide you with a better and customized user experience. Unlike cookies you cannot disable web beacons but they will be used solely with the purpose to enhance user experience.

ix) If you opt to receive marketing correspondence from us, subscribe to our mailing list or newsletters we may use your data for legitimate interests.

Why do we collect information?
i) To provide better services to all our customers.

ii) We automatically collect purchase or content use history to determine the statistics for our top/best-selling products.

iii) Cookies are used to improve our site, our marketing activities, and your experience.

We use cookies to see the popular areas on the website and to count visits to our site.

iv) We may use the data to advertise your feedback on the website, products listed, services offered, and marketing materials. By using this website you are agreeing to that.

v) We collect the data to provide you with updates and details about our goods and services, business updates, and events.

3) How we use the information:
i) To contact you for confirmation of purchases/services on our website or other promotional and marketing purposes.

ii) To respond to your queries or concerns.

iii) To notify you about the latest events or contests, special promotions, and offers.

To tell you about the launch of new products and services.

iv) For customizing your experience with us.

v) To improve our products and services.

vi) We use the information for security purposes, to protect our company, our customers, and our websites.

vii) We use the information to send you transactional communications including emails, SMS, and
WhatsApp notifications.

viii) Display content on our Site.

ix) Communicate with you about, and administer your participation in, surveys, events, programs, webinars, newsletters, promotions, and other site features.

x) Respond to and communicate with you about your inquiries and requests and provide the information you request.

xi) Send periodic emails regarding your account or other Services.

4) Jurisdiction:
If you choose to visit this website, your visit and any dispute over privacy are subject to this policy and the website’s terms of use. In addition to the foregoing, any disputes arising under this Policy shall be governed by the laws of India.

Guardians of minors aged below 18 years will be liable for any information collected on rare diseases concerning the minor. Guardians shall take full responsibility for such minors and activities conducted by them on the website. Guardians include both the parents of the child and/or any person taking accountability and

responsibility for the child.

Third-party websites:
i) We share information with vendors who help manage our online registration process, payments, and transactions.

ii) We will not be responsible if you are directed to a third-party website by clicking any link present on our site.

This Privacy Policy will not apply to those websites. Read the privacy policy of other websites carefully.

iii) We also might share the information with our business partners.

iv) We will share the information if we are investigating for potential fraud or if there is a legal requirement to share such information in Court or with a government agency.

v) If our business is sold we may share the information with a potential buyer or customer.

Email opt-out:
You can opt out of receiving our marketing emails, promotional emails, and newsletters by unsubscribing
to those emails.

*By using our website you consent to our privacy policy


*Unfortunately, the transmission of information via the internet is not completely secure.

Although we do our best to protect your information, we cannot guarantee that information may not be accessed,
disclosed, altered, or destroyed by a breach of any of our physical, technical, or administrative
safeguards. Any transmission of information is at your own risk.

You agree that The Rare World Official is not liable for the unauthorized release of your information unless such release was the result of gross negligence or willful misconduct on the part of The Rare World Official.

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